I can taste the fear...

I'll start with the sobering thought I had today... I mentioned to Elisa some of my fears. I shared with her my thought that I could lose not only her, but also Sarah and Daniel. To compound that thought, tonight we broke bread, (well actually pizza) with a new friend from another country to support his family. He came here to visit a family member with cancer. Sadly she died right after he got here. So instead he spent time with her kids to support her family. Now to be fair, Elisa and I have seen some significant death in our lives. I'm not talking about family alone which is devastating on its own. I'm referring to the deaths of those we've grown to love in the Fanconi Anemia communities. At times I just want to pull all social media, and disconnect the phones with all the sad news we hear. BUT then we would lose contact with a great deal of phenomenal people. In the Fanconi Anemia world we call all the people we encounter with FA - FAmily.

All right, the good thoughts now. Elisa is extremely faithful, and optimistic. She reminded me that cancer can be cured. Even though her cancer in incurable, it's incurable right NOW. Who knows what a year or two can bring?

So our goal is to keep her fighting spirit alive and well. We have HOPE. We have FAITH. Jesus we trust in you. Again, I will refer to Steven Curtis Chapman's song, Warrior. "I can taste the fear, but I choose courage". This is what we're called to do. Feel the fear, acknowledge it, and then kick it's ass. Put on the shield of Christ and BELIEVE Elisa will have a cure. BELIEVE that Sarah and Daniel will have a cure.

I say it again... Jesus we trust in YOU!

(Our family and Fr. Daniel Dury from our parish)